Lucas's ear looks really good right now, except for that little spot. We did not see Lucas's ENT or anyone else from the office on Tuesday, and I was okay with that. We will follow up in a few weeks.
As for his other appointments at CHOP... well, Lucas was very 3. He was pretty cooperative, but rather distracted in the booth, and he was only testing at 35-45 dB with his new ear. Mapping was another issue. He was not happy with having his ears attached and not turned on, and just wearing the new ear alone to be mapped. He still has the same program for his old ear as he's had for at about 6 months now, but he has a new map for his left ear, to give him some more access to quieter sounds. Somehow we managed that.
Then we were off for his hearing evaluation with speech (to measure his progress with his new ear). Surprisingly (because of how he acted for audio), he performed pretty well. She was well planned and quick with her activities. He's able to process more right now than he did at 2 months post-activation, so we're happy to see progress. He had a little trouble with single-syllable words with either the same first or last sound. Those discriminations are still emerging. We concluded that he just needs to gain more confidence, and we should see lots more progress at 6 months post-activation in June.
For now, we'll continue to practice with his new ear alone. Tonight we were playing hearing games, and he asked me to take my old ear off... so I played along and pretended to hand it to him. He proceeded to cover his mouth and ask me to pick up the zebra. It was super cute. He gets it, in his own 3-year-old way.
Now we just wait for his ear to heal and to meet with his surgeon again. Still praying for no surgery!
The Irony
4 months ago
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4 comments:
Good to hear! And too funny how he was switching roles with you. Ben sometimes likes to play audiologist. He'll cover his mouth with a beverage coaster (it looks a little like the embroidery hoop screen the audiologist uses) and tell me to point to the ice cream. I guess our kids have spent a lot of their lives in the sound booth!
Yay for a better map in the "new" ear - appointments can be tough when the patient is a 3 year old! I hope his ear cyst situation stabilizes so he won't need surgery.
I love that he plays the audio role (or AVT role).. that is too cute!
I've been busy for awhile, but finally caught up with my blog reading. ;) Glad to hear things are going better with Lucas' ear now. And also good news about the new map - very exciting! I had to laugh at picturing him asking you to take off your old ear. What a cutie!
Love the reverse role playing! Aiden will come up to me and practice the lings, like I'm the one who needs to repeat them. Our kiddos have been through so much that things like this, that tell us so much, are like second nature to them. So glad to hear everything is going well!
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